Epilepsy12 and OPEN UK national conference 2024

The seventh annual Epilepsy12 and Organisation of Paediatric Epilepsy Networks (OPEN UK) national conference will take place in a hybrid format. The event aims to amplify the voices of children and young people with epilepsies and bring professionals together to support the ongoing quality improvement in paediatric epilepsy care in England and Wales.

More information on the conference is available on the Epilepsy12 website.

Please find the agenda below, and tune into the livestream via the 'Watch Live' button at the top of the page.

Please email epilepsy12@rcpch.ac.uk if you need any assistance.

Agenda

Registrations & Introductions
10:30 - 11:00 Registration and refreshments (in person attendees)
11:00 - 11:15 Welcome and introductions
Chair: Dr Sophia Varadkar, Deputy Medical Director at Great Ormond Street Hospital for Children NHS Foundation Trust
Children & Young People Engagement
11:15 - 11:45 Epilepsy12 Youth Advocates
RCPCH&Us Team and Epilepsy12 Youth Advocates
11:45 - 12:00 Epilepsy Impact & Influence Project
RCPCH&Us
12:00 - 12:30 Engagement project in 'Understanding experiences of CYP with epilepsy from marginalised communities'
Emma Rigby and Nick Morgan, Association of Young People's Health (AYPH)
12:30 - 13:30 Lunch Break
Audit & Quality Improvement
13:30 - 14:00 Epilepsy12 update
Dr Colin Dunkley, Epilepsy12 Clinical Lead
Niky Raja, Epilepsy12 Project Manager, RCPCH
14:00 - 14:40 EQIP Update
Melanie David-Feveck, EQIP Project Manager, RCPCH & EQIP teams
Dr Lanthe Abbey, York Teaching Hospitals NHS Foundation Trust
Fiona Lead, Children's Epilepsy Nurse, Hull University Teaching Hospitals NHS Foundation Trust
Research In Epilepsy
14:40 - 15:10 Health Economics
Lisa Cummings Health Economics Unit
Joseph Lillington Health Economics Unit
Dr Ianthe Abbey
15:10 - 15:50 NHS England Mental Health Screening Pilot
Dr Jim Pauling, Wirral University Teaching Hospital Trust
Dr Victoria Gray, Alder Hey Children's Hospital Trust
15:50 - 16:10 Break
16:10 - 16:30 OPEN UK Update
Dr Richard Brown, OPEN UK Chair
16:30 - 16:45 Conclusions and Close
Chair: Dr Sophia Varadkar, Deputy Medical Director at Great Ormond Street Hospital for Children NHS Foundation Trust

Frequently asked questions

How do I view sessions?
The meeting will be streamed live through this site. A link will be made available approximately 10 minutes before the session is scheduled to start and you will be able to click through to the live stream at this time.
Do I need to download any software?
This meeting will be streamed using some of the latest technology to make it as simple as possible for you to watch. All you need is the latest version of your web browser installed We also recommend using a browser other than Internet Explorer - such as Firefox or Chrome - as older versions are no longer supported.
What do I need to view?
To view the live stream you will need an internet enabled device such as a PC, Laptop, Mac or Tablet. The bigger the screen the better so we don’t recommend using your mobile phone to view. You will also need headphones or speakers connected so you can hear the sound and perhaps a glass or mug of something (optional).
Can I use my iPad?
Absolutely, yes.
Where is it being held?
The live session is 'virtual’ and being hosted online - in fact, right here on this site.
What do I do if I have problems?
You won’t. But in the unlikely event that you do, you can contact technical support here. Try to be as descriptive as possible with the problem you are having so they can help you as efficiently as possible.